Susanne Pettersson

Susanne Pettersson

Anknuten till Forskning

Om mig

I am a RN, and have been working in the field of rheumatology since 1991. In 2004 I became involved in a clinical research project following the cohort of patients with systemic lupus erythematosus (SLE) at the Karolinska University Hospital. In 2012 I defended my thesis “Fatigue, perceived, described and assessed in systemic lupus erythematosus” at KI.

In 2013 I began as Postdoc at Uppsala University, where I stayed for 15 months in the research group of Professor Åsenlöf (Department of Neuroscience, Physiotherapy).

I returned to Karolinska University hospital in April 2014, and got a position as University nurse at the Rheumatology clinic in November the same year. This position was a three year project facilitating the combination of clinic, teaching and research, with affiliation to the research group of Professor Christina Opava. During this period I was also involved in e-Health projects under 4D arthritis, Bridging the gap between health-care and research

In 2021 I returned to the reseach group of Professor Elisabet Svenungssons


Additional information:

Vårdsakkunnig sjuksköterska, RPO Reumatiska sjukdomar 2020-2022 sjukdomar 


My main reseach focus is "Patients' perceptions of concequences of living with chronic conditions", with special interest on illness perceptions and educational needs. I am currently focusing on the patients groups: systemic lupus erythematosus (SLE) and antineutrophilic cytoplasmatic antibody associated vasculitis (AAV), rheumatoid arthritis (RA) and pulmonary fibrosis. Additionnaly I am participating in a qualitative study with  patients recovering from aneurysmal subarachnoid haemorrhage (aSAH), and there family members.


Ongoing supervision in PhD projects:

Title: Patient perspective in vasculitis. PhD-student: Annika Granath, RN: reg. 2021-05, School of Health Sciences, Örebro University. Main supervisor; professor Elisabet Welin. Co-supervisors: Karuna Dahlberg, Iva Gunnarsson, Susanne Pettersson

Title: Impact of pulmonary fibrosis on daily life. PhD-student: Lisa Carlson, RN, MSc, reg. 2021-10, Inst Medicin Solna, Karolinska Institutet.  Main supervisor: professor Magnus Sköld. Co-supervisor: Susanne Pettersson.

Title: Educational needs, quality of life, and health care support in persons with systemic rheumatic disease. PhD-student: Sara Brolin, RN, MSc, reg. 2023-03, Inst Medicin Solna, Karolinska Institutet. Main supervisor; Susanne Pettersson, RN, PhD, Co-supervisors: Iva Gunnarsson, MD Professor, Elisabet Svenungsson, MD Professor,

Title: Lifestyle changes and experience of prednisolone treatment in persons with Rheumatoid Arthritis. PhD-student: Marie-Louise Karlsson, RN, MSc, reg. 2023-04, Inst Medicin Solna, Karolinska Institutet. Katerina Chatzidionysiou, MD, Associate professor , Susanne Pettersson, RN PhD


Exemple of clinical implementation:

The electronic implementation of the Quick Systemic Lupus Activity Questionnaire (Q-SLAQ): a simplified version of SLAQ for patient-reported disease activity, into the Swedish Rheumatology Quality Register


Certificate in Nursing, General Nursing, RN (1988)

BSc in International Nursing (1994)

BSc in Nursing Education (1997)

MSc in Medical Science (2006)

PhD in Medical Science (2012)

Akademiska priser och utmärkelser

Reumatikerfondens Vårdforskningsstipendium, 2016

FRS Yrkesförkovrande stipendium för sjuksköterskor, 2022